Your Story
What would you have liked to have read when you, or a loved one was diagnosed with a strange sounding and rare disease no-one had ever heard of? What were the things you desperately needed to know? What would have helped in those early days, months of emotional turmoil? Where are you now in your PSC story?
And for those who are further along: What is helping? How long have these three little letters, PSC, been in your life? How do you deal with daily life? What are the challenges and how do you overcome these?
Please contact us via the contact page for more information on sharing your story.