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Files and documents available for download

Primary Sclerosing Cholangitis.pdf
File Size: 568 kb
File Type: pdf
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PSC NDDIC.pdf
File Size: 182 kb
File Type: pdf
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PSC NDDIC.pdf
File Size: 182 kb
File Type: pdf
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LFT Tracker PSC Support.xlsx
File Size: 63 kb
File Type: xlsx
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Bowlus Interpreting Your Blood Tests PSCP.pdf
File Size: 35 kb
File Type: pdf
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Cirrhosis NDDIC.pdf
File Size: 151 kb
File Type: pdf
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Digestive System NDDIC.pdf
File Size: 436 kb
File Type: pdf
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Ulcerative Colitis NDDIC.pdf
File Size: 242 kb
File Type: pdf
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Inflammatory bowel disease of PSC: A distinct entity.pdf
File Size: 1474 kb
File Type: pdf
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Bowel Cancer and IBD.pdf
File Size: 348 kb
File Type: pdf
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Crohn's Disease NDDIC.pdf
File Size: 207 kb
File Type: pdf
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What I need to know about Crohns Disease NDDIC.pdf
File Size: 420 kb
File Type: pdf
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ERCP NDDIC.pdf
File Size: 673 kb
File Type: pdf
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A national rare disease plan for Australia.pdf
File Size: 431 kb
File Type: pdf
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Downloading these PDFs will take you out of this website. You will need to press the back arrow on your browser to return to the Home page. Some information is not Australian based, so there may be slight variations in Australian practice. 

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Links to other fact sheets

  • Information about Inflammatory Bowel Disease:  Gastroenterological Society of Australia
  • Information about Colonoscopy: Gastroenterological Society of Australia
  • Information about Bowel Polyps: Gastroenterological Society of Australia
  • Information about ERCP: Gastroenterological Society of Australia
  • Fibroscan, APRI and Liver Biopsy: Hepatitis NSW
More fact sheets available from the GESA website.


Links to Reports, News & Literature

  • FibroScan and transient elastography, Kemp, W & Roberts, S Australian Family Physician, 2013, 42 (7), 468-471 
  • Fibroscan (Transient Elastography) for the Measurement of Liver Fibrosis, Afdhal, N.H. Gastroenterol Hepatic, 2012, Sep 8(9): 605-607
  • Australasian Society of Clinical Immunology and Allergy Inc: Patient Information Autoimmune Diseases
  • Australia and New Zealand Liver Transplant Registry, 26th Report
  • Australian Government Organ and Tissue Authority: Annual Reports
  • Australian Government Organ and Tissue Authority: International approaches to organ donation
  • Primary Sclerosing Cholangitis: One Disease or Several? Christopher L Bowlus, M.D.
  • Scoping Paper on the Need for a National Rare Disease Plan for Australia, Government of Western Australia
  • Genetic study defines link between primary sclerosing cholangitis and other autoimmune diseases​
  • The common problem of rare disease in general practice. Andrew W Knight and Timothy P Senior, Med J Aust 2006; 185 (2): 82-83.
  • Inflammatory bowel disease of primary sclerosing cholangitis: A distinct entity? Nakazawa et. al, World J Gastroenterol 2014 March 28; 20(12): 3245-3254,  ISSN 2219-2840 (online) 
  • The need for worldwide policy and action plans for rare diseases. ©The Author(s) Acta Pædiatrica 2012 Foundation Acta Pædiatrica 2012 101, pp. 805–807 
  • SCENIC international consensus statement on surveillance and management of dysplasia in inflammatory bowel disease . Released 2015, American Society for Gastrointestinal Endoscopy and American Gastroenterological Association
Other research and reports are located in Scientific Articles and News and Video Blog

Other Useful Links


  • Calculator: This calculator is useful to convert US units for blood tests and other measurements into Standard International Units.
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Page created: 21.03.2014
Updated:22.07.2017
Disclaimer:  The information presented on this website is intended for information and educational purposes only, and is not intended to be a substitute for medical advice or information in any way. The information is not written by a medical practitioner, and as such it should never be used for diagnostic, treatment or management purposes. If you have questions regarding your medical needs, always seek the advice of your doctor, specialist or other appropriate and qualified health care professional.
This is a non-commercial website, designed and developed to provide relevant information to people living with Primary Sclerosing Cholangitis.
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